In the Midst of Life (54 page)

Books

Palliative
Care Resuscitation
by Madeline Bass (2006) Published by John Wiley and Sons.
A guide for professionals, patients and families
alike on the ethical and legal issues relating to resuscitation when someone
has an incurable illness.

Person to Person: Guide to the Care of Those with Failing Mental Powers
by Tom Kitwood and Kathleen Bredin (1992):
very good guide but
not up to date, as it was written before the Mental Capacity Act came
into force in 2007.
Published by Gale Centre Publications.

Dementia Care Training Manual for Staff Working in Nursing and
Residential Settings
by Danny Walsh (2006). Published by Jessica Kingsley Publishers.

How We Die
by Sherwin B Nuland (1993). Published by Chatto & Windus/Vintage Books.

Staring at the Sun: Overcoming the Terror of Death
by Irvin Yalom (2008). Published by Piatkus Books.

How to Have a Good Death
by J Ellershaw,
et al,
ed D Beckerman (based on the BBC documentary by Esther Rantzen). Published by Dorling Kindersley

Caring for Someone With a Long-Term Illness
by J Costello (2009). Published by Manchester University Press.

Caring for Dying People of Different Faiths
by Julia Neuberger. Published by Radcliffe Publishing Ltd.

Dying Well: A Guide to Enabling a Good Death
by Julia Neuberger (2004). Published by Radcliffe Publishing Ltd.

On Grief and Grieving: Finding the Meaning of Grief Through the Five
Stages of Loss
by Elisabeth Kubler-Ross & David Kessler (2005). Published by Simon & Schuster.

On Death and Dying: What the Dying Have to Teach Doctors, Nurses,
Clergy and Their Own Families
by Elisabeth Kubler-Ross
(introduction by Allan Kellehear) (2009). Published by Rout-ledge.

Oral Feeding Difficulties and Dilemmas: a guide to practical care, particularly towards the end of life.
A report of the working party under the chairmanship of Dr Rodney Burnham (2010). Published by the Royal College of Physicians, together with the British Society of Gastroenterology.

Ballinger, D. Is it ever acceptable to deceive a patient?
Nursing Times
(1997); 93 (35) 44-45.

Bass, M. Oncology nurses’ perceptions of their goals in the resuscitation status of oncology patients
. Professional Nurse
(2003); 18 (12), 710-713.

Bass, M. Resuscitation
:
knowing whether it is right or wrong.
European Journal of Palliative Care
(2008); 15 (4) 175—178.

Bass, M. Should patients who are at the end of life be offered resuscitation?
Nursing Times
(2009); 105 (3) 19.

Bass, M. CPR decisions in palliative care should allow for a good death
. Nursing Times
(2009); 105 (15) 11.

Bass, M. Advance Care Planning for the end of life.
Oncology and Palliative Care
(2009); 3 (2) 42—43.

Billings, J A. Comfort measures for the terminally ill: is dehydration painful?
Journal of the American Geriatric Society (1985);
33
: 808-810.

Birtwhistle, J, Nielson, A. Do not resuscitate: an ethical dilemma for the decision-maker.
British Journal of Nursing
(1998); 7 (9) 543-549.

British Medical Association. Withholding and Withdrawing Life-prolonging Treatments: Good Practice in Decision-making (2002);
BMA,
London. Available to download from:
www.gmc-uk.org
.

British Medical Association, Royal College of Nursing, and Resuscitation
Council (UK) Decisions relating to cardio-pulmonary resuscitation.
A joint statement from the BMA, RCN and RC
(2001)
.
www.resus.org
.uk
.

Burge, F. Dehydration symptoms of palliative care patients.
Journal
of Pain and Symptom Management (1993); 8: 454—64.

Clark, D. Between hope and acceptance: the medicalisation of dying.
British Medical Journal
(2002); 324, 905—907.

Conroy S P., Luxton, T., Dingwall, R., Harwood, R H., Gladman, J R F., Cardiopulmonary resuscitation in continuing care settings: time for a rethink?
British Medical Journal
(February 2006); 332: 47-482.

Cooley C. Communication skills in palliative care.
Professional
Nurse
(2000); 15 (9) 603-605.

Craig, G M. On withholding nutrition and hydration in the terminally ill: has palliative medicine gone too far?
Journal of
Medical Ethics
(1994): 20: 1339-143.

Dallain, L. Cardiopulmonary resuscitation in the hospice setting.
Cancer Nursing Practice
(2004); 3 (9) 35—39
.

Dean, J A. The resuscitation status of a patient: a constant dilemma.
British Journal of Nursing
(2001); 10 (8) 537—543
.

Diem, SJ
et al.
Cardiopulmonary resuscitation on television
. New
England Journal of Medicine
(1996); 334 (24) 1758—1582. Dimond, B. Not for resuscitation instructions: the law for adult patients in the UK.
British Journal of Nursing
(2004); 13 (16) 984-986.

Ebrahim, S. DNR decisions: flogging dead horses or a dignified death?
British Medical Journal
(2000); 320 (7243) 1155—6.

Ellershaw, J E, Sutcliffe, J M, Saunders, C M. Dehydration and the dying patient.
Journal of Pain and Symptom Management
(1995); 10 (3) 192-197.

Ewer, M S, Kish, S K, Martin, C G, Price, K J, Feeley T W.

Characteristics of cardiac arrest in cancer patients as a predictor after CPR.
Cancer
(2001); 92: 1905—12.

Field, D. Palliative medicine and the medicalisation of death.
European Journal of Cancer Care
(1994); 3, 58—62.

Firth, S. Wider horizons: care of the dying in a multicultural
society. (2001)
National Council for Palliative Care,
London.

Fleming, K. The meaning of hope to palliative care cancer patients.
International Journal ofPalliative Nursing
(1997); 3 (1) 14—18.

George, A L, Folk, B P, Crecilius, P L, Campbell, P L. Pre-arrest morbidity and other correlates of survival after in-hospital CPR.

American Journal of Medicine
(1989); 87: 28—34. Goss, R.
(Letters)
Do not resuscitate orders: without discussion these orders are unethical at any age.
British MedicalJournal
(2001); 322 (7278), 105.

Hayward, M. Cardiopulmonary resuscitation: are practitioners being realistic?
British Journal of Nursing
(1999); 8 (12) 810—814
.

Herth, K. Fostering hope in terminally ill people.
Journal of
Advanced Nursing
(1990); 15: 1250—1259.

Jevon, P. Do not resuscitate orders: the issues
. Nursing Standard
(1999); 13 (40) 45-6.

Kouwenhoven, W B, Knickerbocker, G G, Jude, M D, James, R. Closed chest cardiac massage.
Journal of the American Medical
Association
(i960); 173 (10) 1064-1067
.

Low, J S; Payne, S. The good and bad death perceptions of health professionals working in palliative care
. European Journal of Cancer
Care
(1996); 5, 237-241.

McNeil, C. A good death (editorial).
Journal of Palliative Care
(1998); 14: 1; 5-6.

Mayo, T W. Forgoing artificial nutrition and hydration: legal and ethical considerations.
Nutrition in Clinical Practice
(1996); 11: 254-264.

National Council for Palliative Care.
Ethical decision-making in
palliative care:
artificial hydration for people who are terminally ill. (2002)
NCPC,
London.

National Council for Palliative Care.
CPR: Policies in action:
proceedings of a seminar to inform best practice with CPR policies within palliative care. (2003) NCPC, London.

Regnard, C, Mannix, K. Reduced hydration and feeding in advanced disease - a flow diagram.
Palliative Medicine
(1991); 5: 161-164.

Rousseau,
P. Ethical and legal issues in palliative care.
Palliative Care
(2001); 28 (2) 391-399.

Safar, P. On the history of modern resuscitation.
Critical Care
Medicine
(1996); Feb, 24 (2 supplement) S3—11
.

Sweet, S J, Norman, I J. The nurse—doctor relationship: a selective literature review.
Journal of Advanced Nursing
(1995); 22: 240—1.

Thomas, A. Patient autonomy and cancer treatment decisions.
International Journal of Palliative Medicine
(1997); 3 (6) 317—323.

Tschudin, V
Ethics in Nursing
(2nd Edition) (1992). Oxford: But-terworth-Heinemann.

Vitelli, C; Cooper, K; Rogatko, A; Brennan, M (1991) Cardiopulmonary resuscitation and the patient with cancer.
Journal
of Clinical Oncology 9(1) 111—115.

Willard, C. The nurse’s role as patient advocate: obligation or imposition?
Journal of Advanced Nursing
(1996); 24, 60—66
.

Willard, C. Cardiopulmonary resuscitation for palliative care patients: a discussion of ethical issues
. Palliative Medicine
(2000); 14: 308-312.

Woodrow, P. Nurse advocacy: is it in the patient’s best interests?

British Journal of Nursing
(1997); 6 (4) 225—229
.

Younger, S J. Who defines futility?
Journal of the American Medical
Association
(1988); 260: 2094-5.